We are starting to get the hang of taking care of Cammy. Wow, we are quite busy these days, between her and Tyler. It is wonderful having her home, she adds quite a lot to our family. Cammy has her first appointment at Childrens Hospital tomorrow. We are all going as one big happy family, "hopefully after the results also". Thank you all once again!
SDM, I'm thrilled to hear that Cammy is finally at home. I know you must be so happy to have her home with you after four long months. My prayers will be not only for Cammy, but also for you, your wife, and Tyler. It sounds grueling, but I know that your love for your darling daughter will get you through!
Cammy had her appointment yesterday and is doing just fine. She had a couple of bad gagging issues that freaked out the wife and I, shortness of breath also. We tried to feed her a different way, venting her while feeding her and that seemed to help the problem tremendously. Cammy does have a feeding tube, stomach tube for now for those that don't know.
Man, I am so happy that she is doing well. Since you already have one child I don't have to tell you to try and get plenty of rest, when you can. A tired daddy is a grumpy daddy.:hihi: I was thinking about Cammy the other day, I bet that the air up there in CO. is better for her than the air down here in LA. I hope everything continues to go well. Keep us up-to-date. :thumb:
Well, I finally did it, I did something that I never thought I would do. I asked God why this little girl has to suffer like she has and does and us as well. It has been far from a bed of roses since Cammy has been home, it has been wonderful having her here but it has been total chaos, between learning her meds and handling a four year old and then it has been certain things about Cammy like her stuffiness at times now her gagging, practically dry heaving at times because she can't barf. She has a nisson, the top of her stomach has been tied in a knot to prevent milk from going into her lungs. It has gotten worse with every day, she didn't seem to have this problem the first few days from the hospital and yes we have made changes to the way we feed her but before we made changes this started happening. I don't understand it, 99% of the time after every meal this happens, at least 3 to 4 times a set, usually 2 sets. We will be contacting the doctors today, surely something can be done to releave this a little. We have learned that this could create a hernia. My wife and Cammy both went to the ER on Saturday, Cammy had a retraction and Kim was having pains in her chest. Her EKG came back perfect so its the stress we are under, a retraction is where the stomach goes in and u see something moving on the sides of the stomach. Cammy was checked out and said to be doing fine. I can't tell you how miserable and hard it is to see your child suffer, a few probably know. Thank You all for your thoughts and prayers....
SDM, I'm so sorry how hard this is for you and your family. I can understand why you question God. I posted earlier on this thread that I simply don't know why helpless babies have to suffer, and the parents suffer right along with the babies. Plus, I know you worry about Tyler and still realize that he has to have attention, too, since his life has also been changed dramatically. God bless you. I'll continue to pray for you. His presence is going to pull your family through, even though it's horrible that Cammy is sick.
Stacey, you are way too nice, sweet, caring, etc. Get over to Free Speech Alley and show us your ugly side. :yelwink2: Hang in there SDM. Everything is for a reason.
Thanks, I'm feeling quite better than I was this morning, we are trying different methods of how we feed her such as not moving her, leaving her in her swing until after she has eaten and is vented. I will let you guys know what we find out. The wife talked to a surgical specialist today who says this happens with babies that have had their stomach tied, some grow out of it sooner than others, once her stomach grows as she does it should go away.
SDM.......hang in there.......good days, bad days......the bad days get fewer and fewer. Thinking of Cammy and you and your sweet family every day!
Stay Strong Sourdoughman. I can't even begin to imagine how trying and exhausting it must be for you and the Mrs. Cammy couldn't have hoped for better parents. We are pulling for you all. God Bless your family
